February 29 is Rare Disease Day

Rare Disease Day

Rare Disease Day® takes place on the last day of February each year. The main objective of Rare Disease Day® is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The National Organization for Rare Disorders (NORD) is the official Sponsor of Rare Disease Day® in the United States alongside their sister organization, EURORDIS (The European Organization for Rare Disorders), which organizes the official international campaign. According to NORD, in the U.S., any disease affecting fewer than 200,000 people is considered rare. There are more than 7,000 rare diseases affecting 25-30 million Americans. In other words, one in ten Americans are suffering from rare diseases and more than half of them are children.  Besides dealing with their specific medical problems, people with rare diseases struggle to receive a proper diagnosis, find information and get treatment. The rarity of their conditions makes medical research more difficult.